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Saatja: HaDEA <[email protected]> Saaja: Info - SOM Teema: Reminder: Invitation to contribute – HaDEA study on the provision of care for AYA cancer patients in the Union Tähelepanu! Tegemist on välisvõrgust saabunud kirjaga. Tundmatu saatja korral palume linke ja faile mitte avada. Dear Sir/Madam, This is a kind reminder to participate in the ongoing survey for the Exploratory study on the provision of care for Adolescent and Young Adult (AYA) cancer patients in the Union, initiated by the European Commission and conducted by ICF, together with Spark Legal and Policy Consulting (‘Spark’), Fundació de recerca Sant Joan de Déu (‘SJD’) and Timelex. As part of this study, we are examining the provision of healthcare and services to AYA cancer patients and survivors in each of the 27 EU Member States, Iceland, and Norway. For more information, please see the Endorsement Letter<https://www.icfeurope.com/Projects/AYA_Cancer_Care/AYA%20Cancer%20Care%20Study_Endorsement%20letter.pdf> from the European Commission, Directorate-General for Health and Food Safety, including more details on the study objectives as well as the Data Protection Notice<https://www.icfeurope.com/Projects/AYA_Cancer_Care/Data%20Protection%20Notice.pdf>. In this context, we have launched a survey to collect insights on the current provision of AYA cancer care across the EU Member States, Iceland and Norway as well as to gather views on perceived barriers, enabling factors and examples of potential good practices. Please note that the survey will stay open for six more weeks and close on May 12. It can be accessed via the following link: https://horizons.confirmit.eu/wix/p442291498503.aspx?__sid__=jf44yunW0jIagNX5xven57khQifZiqa4BxR1qIIKd_ncNONkCpNyMphlnMnSJc8NKd-DSFiryOm2gpk_alKThg2 Please note that the link above is personal to you and should not be shared with others. If you wish to share the survey with colleagues or your network, you can contact us at [email protected]<mailto:mailto:[email protected]> and we will provide you with a general link that can be shared. We also wish to note that the JANE 2 Network of Expertise on AYAs with Cancer is progressing in parallel to this study. For more information on how both initiatives complement each other, please consult this joint communication<https://www.icfeurope.com/Projects/AYA_Cancer_Care/Joint%20Communication.pdf>. As outreach for these activities is being conducted by our team as well as by other organisations, you may receive similar invitations more than once. If you prefer not to receive further reminders from us, please contact our project mailbox and we will remove you from our distribution list. Please note that we can only manage removals from our own mailing list and cannot influence dissemination carried out by other organisations. Thank you in advance for supporting this study, and please do not hesitate to contact us with any questions at [email protected]<mailto:[email protected]>. Kind regards, The ICF study team Saatja: "HaDEA" <[email protected]> Saaja: "Info - SOM" <[email protected]> Teema: Reminder: Invitation to contribute – HaDEA study on the provision of care for AYA cancer patients in the Union Kuupäev: 2026-04-14 15:50 Tähelepanu! Tegemist on välisvõrgust saabunud kirjaga. Tundmatu saatja korral palume linke ja faile mitte avada. Dear Sir/Madam, Thank you for starting the survey for the Exploratory study on the provision of care for Adolescent and Young Adult (AYA) cancer patients in the Union, initiated by the European Commission and conducted by ICF, together with Spark Legal and Policy Consulting (‘Spark’), Fundació de recerca Sant Joan de Déu (‘SJD’) and Timelex. We appreciate the time you have already invested in your response. We understand that you may still be in the process of completing the survey, and we would like to offer our support in case you have any questions or technical difficulties that may be delaying completion. If you need any assistance at any stage, please contact us at [email protected]. We would be happy to help. Please note that the survey will stay open for four more weeks and close on May 12. You can resume your response to the survey via the following link: https://horizons.confirmit.eu/wix/p442291498503.aspx?__sid__=zH7bwDQ2lNXCr C4oFuhYz7HZcnR1kV-RsN1ZCsb29_na6m5KmjP4a1tuCUtiIHP0Zki7FP7oQStNOh9KYRu3sQ2 To help you plan your response, we have also attached a short Q&A document for national authorities which includes the survey structure and the estimated completion time for each section. If you wish to share the survey with colleagues or your network, you can contact us at [email protected] and we will provide you with a general link that can be shared. Thank you in advance for supporting this study. Kind regards, The ICF study team